“Write It Down.” 11.26.21

When I was little, my dream job was to be an author and illustrator. I wrote short stories as a kid, and published a few poems in high school. Now, I am a published author and illustrator and have accomplished my childhood aspirations. As an adolescent I was shy, sensitive, quiet, and mostly private with my emotions. Behind closed doors I was often irritable, angry and depressed, until it was time to sleep and the tears rolled down my face. I rarely smiled in public, but my family saw me for who I truly was and I am so grateful for each member. I lived and laughed and adventured. I didn’t know why I was crying, or where the stomach aches and dread came from. I was more often a happy kid with amazing parents and wonderful sisters who always had my back. So where did these tears originate?

I suppose that because I speak freely; I jump from one thought train to the next; and I never run out of words; I am able to write down the details that form instantly with the tap of my fingers on the keys. I used to write it all down on college ruled paper, not the typed words readily produced by a computer and printer. There was not a computer at my disposal. Write it down. That is what I used to do. Then there was the typewriter. The unpublished children’s books I wrote and illustrated as a child were pieced together and illustrated with my sister’s help. I would write it all down, page by page as the ideas flowed effortlessly from my mind onto the paper. My little sister, Kimberly, would sit with me in my room and we would read the stories I wrote. She has always been thoughtful, generous and kind. She has one of the most active, vivid imaginations I have seen in my life. She helped with creative suggestions for the illustrations. Kimberly became a reader, writer, artist, and high school English teacher when she grew up. I was not surprised. I suspect she is correcting my grammar and punctuation right now.

Writing and illustrating have always been so important to me. Art is my world. It is easier to understand a puzzle or stumbling block when I create. Most of the time I don’t know what I am feeling until I read it in my own handwriting. Whatever I have going on inside sprouts up and grows on a page in prose. It is therapeutic. Writing those stories helped strengthen the bond between me and my sister, and ultimately became a huge part of who I am today.

Thank you, Kimberly. I am forever grateful for the part you have played in my life.

I hope that reading my words is helpful to others. Writing it all down is the best advice I can offer. I have changed so much since that day in elementary school when I dressed up as an author and illustrator for “Career Day.” I am no longer the shy, quiet wallflower of my past. Now I speak every thought as it appears in my mind. Writing it all down helps me focus on what I really want to say. I no longer use my typewriter and have upgraded to a laptop, but my message is the same. Love your sisters unconditionally; don’t take anyone or anything for granted; never forget who you were, are, and will be. Write it down, and remember.

–SJB

“My Nest” 11.19.21

When I was a small child, I had a vivid imagination and the tools to play alone. I have an excellent long-term memory, though my short-term is struggling. I loved to play outside, camp, hike and participate in other family activities, but even as a kid I needed my space. Whenever I felt overwhelmed, stressed, or wanted to be alone, I built a space for myself to feel comfortable and safe. The roots of an old tree were a perfect place to settle in and rest or play by myself. Behind the couch in the living room. Inside a tent or make-shift fort. I slept in a bunkbed with my sister, and I was on the top bunk. I shrouded the space with sheets hanging from the ceiling. Now, my nest is a room in our house where I can go to be alone or to spend time with material possessions that bring me joy, and remind me of childhood happiness. This is my retreat. Sometimes, I lie on the bed in that room and fill the space with silent thoughts for hours. I think about my past, present, and future.

There are forces at work inside me, which I have difficulty identifying sometimes.

I understand Mania and can sense a manic episode headed in my direction. There are symptoms. When I was younger, these symptoms were more easily detected by my mom, and that frustrated me. I wanted to figure it out and beat her to the punch. I read about Bipolar I Disorder, researched, and learned about physical responses to triggers. I discovered what triggered me and stayed away from those before they became catastrophic. I learned–with help–how to manage my brain and keep the mania at bay. When I felt mania encroaching, I contacted my doctor. I tried to sleep, forced myself to eat, and stayed away from books, movies and songs that stirred up my insides. I began to know my body. I can now catch mania before my mom does and it feels like a tremendous success.

I understand Depression. I felt dread and anxiety in the pit of my stomach for the first time when I was thirteen. There were no psychiatrists in the area where I grew up. My pediatrician had no idea how to handle it or even recognize it. It was a feeling much like procrastination–the feeling of dread most kids experience on Sunday evenings, knowing the weekend is over and they are going back to school on Monday morning. That is what I came to believe was true for me. I was lazy and lethargic, irritable, angry, and sad for indiscernible reasons. Later in life, I was told that those feelings were contributed to my illness. My therapist said that my “self-focus” came from discovering how my brain works and did not mean I was selfish or lazy. I truly was not “in the mood.” Seriously? That’s a reality? Yes. Quite a comforting truth.

I recognize Bipolar I Disorder, which makes up the mood portion of my illness. The mood part is a combination of mania and depression. The “schizo” part is much harder to deal with. I sometimes hear voices in my head, experience paranoia, anxiety, panic attacks, delusions, irrational thinking, the loss of my memory, and many more symptoms attributed to Schizoaffective Disorder. When a few of these symptoms arise together, this may lead to psychosis. It is harder for me to identify because I have not been dealing with that part of my illness for the duration of my condition. It’s new, or only just discovered. It is important to acknowledge that psychosis does not mean “crazy” or to mistake “psychosis” with “Psycho.” That is another myth tied to the stigma. This is the part of my illness I have the most trouble dealing with and I would hate for anyone to misunderstand. With medication, family, psychiatry, and psychologist support, I live a happy, stable life. I do not experience psychosis frequently, yet knowing that psychosis is a real possibility scares me because it takes over my life and confuses reality. Understanding my mind and body has been no small task. It has taken a lifetime to recognize what goes on inside my head, while much of it still baffles me. The journey continues, and I am ever closer to unraveling the mystery and uncovering the invisible answers, while pondering in my nest.

–SJB

“Owning My Truth” 10.15.21

I feel more comfortable writing about my struggles and successes when my name is Jane. The name provides a little protection; it is my turtle shell. My name is not Jane. It is my grandmother’s name and my middle. I was named after my dad, Samuel. My name is Samantha. Most people call me “Sam.” It is an honor to be named after one of the coolest people I know.

I am ready now to own my truth and to step out of Jane’s shadow. I have a psychiatric disorder and a label stamped on my head, but I do not let it define me. I lead a stable life, and I have schizoaffective disorder. This psychiatric disorder is like a mixed salad that you did not make for yourself. Imagine that you went to a dinner party, and the host brought out the salad as the first course. There is so much going on in this bowl that you cannot distinguish all of the ingredients even after you have tasted it. Schizoaffective disorder is full of indistinguishable ingredients. Not all cases are the same, but many people struggle with one or more of these illnesses: schizophrenia, bipolar disorder, anxiety, depression, etc. with a dash of salt and pepper on top. My illness is a mix of bipolar disorder and schizophrenia. From my perspective, it is so complicated that even after tasting it I cannot decipher everything within this salad.

Known Ingredients:

*Shifts in mood/demeanor

*Unexplained dread in the pit of your stomach

*Sadness for no discernible reason

*Shopping sprees and accruing debt

*Insomnia

*Too much sleep

*Procrastination

*High energy

*Low energy

*Hallucinations

*Delusions

*Inner voices

*Anger

*Outbursts

*Weight gain

*Weight loss

*Lack of motivation

Unknown Ingredients: ???

As a writer, it is important to write what you know. This is what I know. As I embrace the complexity of my illness and the aspects I cannot fully understand, I must confess that I rarely eat salad.

–SJB

“Te amo.” 10.10.21 (on Sunday)

ONE YEAR

***Chester’s story continues…If you haven’t seen or heard of Chester, I encourage you to learn more about him from previous articles. He is my cartoon self. He portrays my actions, feelings, and big events in my life. It is easier to see what is going on inside my head when I step back and look through Chester’s eyes. I encourage you all to embrace the cartoon character who inhabits your mind. You will find it helpful and fun!

Our story continues as all stories do…but first, a look inside Chester’s heart on the week he first he met Lucy.

When Chester was a young boy, he watched a movie that changed his life forever. He is a romantic, and perhaps this is why. Toward the end of the movie, the protagonist goes to the fair and rides the ferris wheel with the girl he loves. Since then, Chester vowed never to ride the ferris wheel until he was absolutely sure he was riding it with his true love, and never before. Many years passed. No ferris wheel. When Chester was twenty eight years old, he moved to a small town in north Georgia, where he met Lucy. Chester has a friend named Krupa who had a shop called “Roots and Remedies” next door to Lucy’s gallery. Inside his friend’s shop, there was a section by the window filled with models you could build. There was a ferris wheel standing completed and only for show. Chester bought that ferris wheel the very week he met Lucy…

Chester began to really love Lucy. Not in the “We’re just friends,” kind of way. He more than liked her. Not the way people “love” each other when they are infatuated or projecting. He really loved her. He loved her when she was goofy and when she made him laugh. He loved her when she was grumpy and it was his turn to cheer her up. They became so close that they could read each other’s minds and finish each other’s sentences! But he was too afraid to tell her; he was afraid of her rejection. So, hoping she may (or may not) know what it meant, he told her in Spanish.

“Te amo,” he said.

She said it in return.

This went on for quite a while, as Chester built up the courage to tell Lucy that he loved her–in English. Chester’s friend, Diana, told him that it didn’t count until you both knew what it meant and it was said in your native language.

Lucy beat him to it.

They were pulling up to a Mexican restaurant for dinner when Lucy said, “I think I love you,” to which Chester asked, “You think?”

Lucy said, “I love you.” Chester was so relieved. He responded with, “I love you too, Lucy.” From then on, the love blossomed.

This is the beginning of Chester and Lucy’s epic love story.

Five years later, on the anniversary of their first kiss, Chester presented the Ferris Wheel to Lucy, as he had known long ago that it would someday find its way into her hands. Years later, Chester asked Lucy if she did, in fact know what “Te amo,” meant, and she said, “Yes.”

Chester and Lucy have been married for one year!

–SJB

“Harnessing Happiness” 10.01.21

As far as I know, we aren’t born happy. We enter the world screaming at the top of our lungs. This is a world outside the comfort of our mother’s womb–the safest home we have known. Once we step into this big, wild, complicated environment, we face issues that later seem trivial; right out of the belly they seem humongous.

Many people have to work diligently to achieve happiness. There are pills to relieve anxiety and depression, but no pills full of happiness. We make our own happiness when we are not enveloped in its presence. I take several medications which aid in my struggle for happiness. I also muster all of the energy I possess toward reaching the level of happiness I require.

My growth was stunted at the age of fifteen because of my illness. My mind reverted to happy times in my past to help me forget the hard times. When I was nine, I was interested in reading about and collecting historical dolls, their clothing, and accessories. I have a massive collection now, because when you are an adult and have money you can buy toys that your allowance couldn’t cover when you were little. I can hold my first doll and breathe deeply, remembering the happy Christmas day when I first saw her under the tree. This comforts me. I can do this remembering technique with every doll and stuffed animal I have in my “nest” at home. I can snuggle with Tigger and remember the Disney store in New York City on a trip with my husband. Every time I hold “Bert,” my teddy bear, I am reminded of my earlier childhood happiness. There is one book that can comfort me like nothing else.

My Grandmama Patte was a storyteller. When I was little, she told precious stories to me and my sisters. We would ask her to tell us a story and request our favorites. There were five that stuck with me. She embellished and the details differed somewhat each time she told them. She would ask us to help her tell the stories, as she couldn’t quite remember everything. We would fill in the blanks where she forgot. I think she was trying to commit these stories to our memories long after she was gone. She succeeded. We grew up thinking she made up these stories on her own. When we were older, she gave us one of the most special gifts I have ever received. She bestowed upon each of us a book of Native American folklore; we found all of the stories she had told us throughout our lives. This book is so important to me because she died a few years later, but the stories live on. The happiness I gain from this book is monumental. Whenever I want to hear my Grandmama’s voice, I turn the page and concentrate with all my strength. I can hear her reading the story to me. When I am trying to fall asleep, daydreaming, or trying to control a panic attack, I think of joyful times I have experienced in my life. Deep breathing is key. Grandmama Patte’s voice is soothing.

There are many avenues toward happiness. One should not rely on another person for one’s happiness, though it is wonderful to have people in your life who bring you love and peace. There are steps to be taken in order to harness happiness and everyone has their own way of coping. Making art brings me closer to contentment. I sketch and color under a bright light that keeps me focused and comforts me. I am a pen pal to my older neighbor across the street. Sending and receiving letters with him brings me great joy. Stepping out for sunshine is an excellent way to soak up some natural therapy. Exercise is also helpful and will raise levels of serotonin, which stimulate delight.

These activities help me as an individual and may not work for everyone’s brain. It’s worth a try, don’t you think?

—SJB

“Christmas in July” 8.6.21

I am soaking in the melody of this morning, as my dog and husband are sleeping. The early birds are catching worms and the crickets haven’t yet realized that night is over. The small quiet sounds are peaceful; I am listening to the day awakening. Sometimes lack of noise on the outside invites thoughts and regrets on the inside. Recently, my family celebrated “Christmas in July” literally, as we were not able to gather for the real festivities last year. I don’t think we always appreciate the wonderful people in our lives. I had a month to catch up with my little sister, Jessica, before she moved across the country. I wish I had spent more time with her, but if I look deeper, I see that our time together was valuable and good quality. There are always regrets and things we could have done differently. Coulda, Woulda, Shoulda.

One problem with our pretend Christmas was that it was supposed to be my parents and all of my sisters and brothers. We weren’t all present. We had planned very far in advance so that we could set the date in everyone’s calendar. We were missing my sister, Amy–who suddenly found herself buried in work on Saturday and Sunday–and my brother, Rob, who usually doesn’t go anywhere without her. The family dynamic is thrown off balance when any of my family members are absent from group gatherings. Every member of our family carries a different candle, and when a candle is absent, that bit of darkness is distinguishable.

Mom rented a boat on Sunday to increase the fun factor of “Christmas in July,” and we spent the day on the lake. Logan (our dog) spent the day at his sister’s house because he is little, doesn’t have a life jacket, and can’t swim. Not a good combination. I think he had a better time in the yard than he would have on the boat, despite his love for sun bathing.

It was a great day. A day without worries or obligations. If you didn’t wear sunscreen, it was noticeable later. We swam in the lake, had a picnic, and felt the wind in our hair.

There is no better way to be reminded of what you have until you almost lose it. While my sister, Jessica, was here I was in the mindset that even when she lived far away, she would always be around; she would probably return to our part of the country one day. I took her for granted. She and Dad drove the truck and trailer to Virginia to gather her possessions and then headed to her new home in Portland. When they were two hours from their destination, they were moving slowly and about to stop for gas. The driver behind them was coming up fast and not paying attention. Luckily, my dad is a good driver and noticed this in his side mirror. He told Jessica, her dog, and two cats to “Hold on.” They were hit hard from behind; the truck and trailer flipped and landed right side up. The truck, trailer, and most of Jessica’s belongings were totaled. Dad, Jessica, her dog and two cats walked away physically unscathed.

Every night since, I have had a hard time falling asleep because I cannot shake the fact that I almost lost two of my favorite people in this world. This near-death experience amplifies the voice in my head that screams, “Appreciate them! Love them! Spend every moment with those you love as if it is your last chance.” I will never take them for granted again. Let this be a lesson that no one is invincible and we must love as deeply as we possibly can.

–SJB